Keepsake Cookbook

Do you and your loved one love cooking? Maybe baking is what makes you feel at home. In either case, there is something to be said about the feeling you get when taking your first bite of a home cooked/baked treat.

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Creating a cookbook with your care partner can be a fun way to reminisce and leave a legacy for generations to come. It can be as simple as compiling old recipe cards or as intricate as creating a recipe book online complete with pictures. Keep in mind that this project doesn’t have to be finished overnight. It can simmer for days, weeks, or months to come!

Step 1: Choose your recipes

What are your family’s trademark recipes? Is there anything that has become a traditional birthday dinner, holiday dish, or rainy day snack?

Step 2: Choose your Methods

You might want to talk with your loved one and decide on a type of cookbook that will best combine your creative style with your skill set. You could write out individual recipes on index cards to insert in a scrapbook, create a larger more intricate scrapbook, or use online websites (e.g. Shurtterfly.com) to make one digitally. Feel free to exercise creative freedom, engage others in the process, and make changes based on skills and abilities.

Step 3: Write your book

Try making the dishes as you go! Talk about the smells, colors, and textures of different foods. Use this time to reminisce and identify fun memories associated with your recipes. Feel free to include these stories in your book! Additionally, if your loved one needs more assistance in the kitchen, be sure to break down each task into clear simple steps.

Step 4: Share your book with others

A cookbook made with you and your loved one is a beautiful representation of your family’s traditions, history, and relationships. You can use this book and its recipes to share your story with other family members and friends.

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Our Story to Diagnosis on the Alzheimer’s and Other Dementia Roller Coaster

Hello, readers! I am excited to share a post with you that was written by a guest contributor. This caregiver’s journey toward getting a diagnosis for her husband was quite the roller coaster and took many twists and turns. Please read on to learn more about her and her spouse’s experience, and her advice for other caregivers. 

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It all began in August of 2016, when after answering the same question for the fifth time in as many days to my husband of 26 years I decided to keep track of things I thought might not be normal. In mid-October I sat my husband down and told him I was going to go to with him to his annual check-up in November. He asked “Why?”.  I simply stated that I had noticed some things that concerned me about his cognitive state. He looked puzzled but agreed.

On November 22, 2016, with a little over two pages of notes and the Alzheimer’s Association’s Preparing for Your Doctor’s Visit sheet in hand, we were ready for our visit.  Dr. H. came in after reviewing the documents, sat down across from us, and said he would like to do some testing. Dr. H. administered a mental status exam, and unfortunately, the test results indicated that my husband was cognitively impaired. With a series of blood tests and a CT scan scheduled to take place before our next appointment in December, we left the doctor’s office with our heads swimming!  I asked my husband, through tears, if he was mad at me. I told him it was ok to be mad at me.  This is not what I wanted, but I couldn’t stand by with my head in the sand and pretend that nothing was wrong!

During this time, I was watching my husband go to work and come home with nothing left to give because he was trying so hard to keep it together at work. I decided that we needed some advice so I called the Alzheimer’s Association Helpline on a snow day off from school. They helped to talk me through the situation and even talked to my husband

As roller coasters do, ours was about to take a plunge down a steep hill!  At our neurology appointment in April, we were wretched about the tracks as Dr. R. told us he feels certain that Jack does NOT have Alzheimer’s but another form of dementia, possibly Frontotemporal Dementia (FTD). Dr. R. explained that my husband’s behavioral changes and his age were indicative of FTD.

One of the hardest things about dementia and especially the one we may be facing is:

  • That family and friends don’t understand he looks healthy and can hide it well for short periods of time.
  • They don’t see this man sobbing because he’s afraid he’s going to forget you and he does not want to be alone going through this.
  • They don’t see the fear in his eyes when he can’t figure out how to turn the shower off.
  • They don’t see the agitation that he can’t explain.
  • They don’t see how much you just want your old life back.
  • They don’t see that you will go to the ends of the earth for this man to keep him safe and at home with you.
  • They don’t understand how isolating it is for us both.

I know that one day this roller coaster ride will be over but for now it’s the ride we’re on. And it’s definitely not one to be on alone!  So friends, if you are on a similar roller coaster ride, pick up that phone and call for help!  You are not alone! Call the Alzheimer’s Association 24/7 Helpline at 1.800.272.3900 for support.

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Spring Cleaning

Spring Cleaning

It’s that time of year again! The tulips and daffodils are in bloom, the sun is shining, and the weather is warming up to beautiful breezy temperatures. With all of the freshness of blooming nature, why not use this season to bring freshness into your home?

Not only does Spring Cleaning give you an excuse to scrub those areas that get little attention during the closed-in cloudy days of winter, but it can also reduce stress. Clutter and mess can be especially anxiety provoking for people with dementia as it can result in over stimulation. With too much clutter, people can be distracted by their surroundings, confused by the number of objects that they need to ascribe meaning to, and clutter can be a signal that there is work to be done. Additionally, clutter in hallways and walkways can be a fall risk. So, while working to clean and de-clutter your home, why not engage your loved ones in helping?

Ways to involve people with dementia in spring cleaning:

  1. Folding, hanging up, and putting away laundry
  2. Washing dishes
  3. Wiping down tables and countertops
  4. Dusting
  5. Sweeping
  6. Sorting through old magazines

Additional Tips:

  • Break down larger tasks into simpler individual steps
  • Encourage people to be as engaged as their skill set allows
  • When sorting through or dusting pictures, magazines, etc., use this opportunity to reminisce. Just be sure to avoid saying, “Remember when…?”
  • Take breaks when necessary. People with dementia often respond more readily to your emotions than your words, so be careful to not convey exasperation, anxiety or anger with your body language. Try to view these activities as fun and energizing!
  • Engage people in cleaning tasks that they’ve done frequently or enjoyed in the past.
  • Always pay attention to any safety hazards that could come up while cleaning.
  • Remember that the value is in the process rather than the result. If your loved one’s task isn’t finished exactly the way you like it, that’s OK. Use these activities as a chance to engage physically, mentally and socially with your loved one and worry about the results later.

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Keeping Your Loved One Safe

Location Devices

According to the Alzheimer’s Association, as many as 6 in 10 people with dementia will wander at some point during their journey with the disease. This behavior becomes dangerous when an individual with Alzheimer’s becomes lost and disoriented.  The person may no longer remember their address, locations they were once familiar with, and possibly their name. The following products are designed to keep your loved one safe in case a wandering incident does occur.

MedicAlert + Alzheimer’s Association Safe Return® MASR

The Alzheimer’s Association MedicAlert + Safe Return includes:

  • A personalized identification bracelet for the person with dementia to wear
  • A personalized emergency card for their wallet, on the card is their member identification number and the emergency toll-free number
  • 24-hour emergency response service
  • Optional identification bracelet available for the caregiver to wear, which alerts anyone in case of an emergency that this person is caring for an individual with a MedicAlert + Safe Return services

For more information:  Visit www.medicalert.org/safereturn or Call 1-888-572-8566

PocketFinder GPS Senior Tracker

PocketFinder GPS

  • Allows you to see the location of your loved one that is wearing the PocketFinder on them
  • Allows you to view location on the app or on the computer
  • For more information: Visit www.pocketfinder.com/gpsseniortracker/

GPS SmartSole®

  • Has a GPS device located in the sole of the shoe and works like smartphone technology
  • Refreshes and checks in with you every 10 minutes letting you know where your loved one wearing the GPS SmartSole® is located

For more information:  Visit www.gpssmartsole.com/gpssmartsole/ or Call 213-489-3019

Freedom/Pal GPS Watch

Freedom Pal GPS Watch

  • A watch with a GPS tracker in it that your loved one wears and a receiver that the caregivers has
  • Allows you to view your loved one’s location via the website or your smartphone
  • Allows you to set zones that are safe and alerts you when your loved one is outside of those zones

For more information:  Visit www.rmmedicalsales.com/products.html or Call 952-457-3401

Mobile Help GPS

Mobile Help GPS

  • Mobile Help is an emergency help button that requires the person wearing it to press the button, which alerts the 24-hour emergency call center.

For more information:  Visit www.mobilehelp.com/ or call 1-800-992-0616

Micro GPS Tracking System

  • Can be used for your loved one or for the car
  • Options to set safety zones and when your loved one is outside of the set zones you will be alerted.

For more information:  Visit www.gpstrackingtracker.com/Senior-Adult-Trackin or call 1-561-235-7878

Keruve Family Direct Locator

Keruve Family Direct Locator

  • A watch with a GPS in it
  • Has a safety lock so that it cannot be removed by your loved one wearing the watch
  • Can locate your loved one by simply pressing a button located on your receiver and their location and position will appear on a map located on your receiver

For more information: Visit www.keruve.com/ or call 530-303-8893

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Calling All Caregivers…You’re Invited!

2017 Alzheimer’s Association Advocacy Forum

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The Alzheimer’s Association will soon be opening registration for the 2017 Advocacy Forum, and we would like to invite you to join us. The Alzheimer’s Association’s Advocacy Forum is a unique opportunity for Alzheimer’s advocates from across the country to gather in Washington, D.C. to directly appeal to their members of Congress about Alzheimer’s disease. Caregivers, persons with the disease, and those that have lost a loved one to Alzheimer’s receive training and embark on Capitol Hill to tell their story and ask for policy change to support our vision of a world without Alzheimer’s. In 2016, over 1,100 people from across the country (24 from Michigan) participated in this event.

Participants of past Forums have raved about this event as an empowering experience. After the Forum advocates feel charged up and ready to tell their story and make change happen. The helpless feeling that often accompanies Alzheimer’s for many is changed into a feeling of power and an opportunity to improve the lives of others.

The Alzheimer’s Association’s Advocacy Forum is also highly impactful for Members of Congress. In our experience, legislators listen intently when their constituents travel to our nation’s capitol to speak with them.

Alzheimer’s is a triple threat, with soaring prevalence, lack of treatment and enormous costs that no one can afford. If we’re going to address this triple threat, action must be taken by all levels of the government. Attending the Advocacy Forum is one way to take action, and we’d love to have you join us!

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About the Alzheimer’s Association’s Advocacy Forum

The 2017 Alzheimer’s Association’s Advocacy Forum will take place March 27-29, 2017 at the Marriott Wardman Park, Washington, D. C. To register and for event details like schedule, location, travel, and more, visit http://www.alz.org/forum or contact Lindsay Brieschke at lbrieschke@alz.org

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2016 Metro Detroit Fall Conference: A Meaningful Life with Alzheimer’s Disease

Early bird registration for our 5th Annual Metro Detroit Fall Conference “A Meaningful Life with Alzheimer’s Disease”, done in collaboration with Wayne State University’s Institute of Gerontology, is now open! The conference will bring together healthcare professionals, caregivers, family members, and individuals living with the early stages of memory loss on Friday, November 18th at Schoolcraft College’s VisTaTech Center in Livonia. Registration includes an entry to the conference, breakfast, lunch, as well as five continuing education credits for professionals.

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We are pleased to announce this year’s keynote speaker will be Beth A. D. Nolan, Ph.D.

Dr. Nolan serves as a Lead Mentor Trainer and Coach and directs research for Positive Approach to Care (PAC). Formerly an Assistant Professor at the University of Pittsburgh’s Graduate School of Public Health, Dr. Nolan received her Ph.D. in applied gerontology. She has worked with a variety of human services agencies to implement evidence-based programs for behavioral health, criminal justice, medicine, and senior living, and now works to help move caregivers to become carepartners.

Conference attendees will gain powerful insight into the true experiences of living with dementia as well as practical applications for implementing person driven care and methods to enhance quality of life. You will hear from individuals whose lives have been personally affected by this disease, engage in interactive activities and discover new resources and tools to assist families through their dementia journey.

 

To learn more visit

alz.org/gmc

or call our 24/7 Helpline at 800.272.3900

We hope to see you on November 18th!

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This conference is sponsored in part by Schoolcraft College.

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Register with Alzheimer’s Association TrialMatch

Clinical trials are essential to advancing Alzheimer’s disease research at a time when Alzheimer’s is reaching epidemic proportions. Through clinical studies conducted over the last 20 years, scientists have made tremendous strides in understanding how Alzheimer’s affects the brain. It is only through clinical studies that we will develop and test promising new strategies for treatment, prevention, diagnosis, and ultimately, a cure for Alzheimer’s disease.

To learn more about how to participate in clinical trial, watch the video below about TrialMatch (a free, clinical-trial matching service).

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