In the Midwest and other regions in the U.S., we have dealt with subzero temperatures, snowfall by the inches, and slippery, unsafe conditions for the past several days. If you usually enjoy being outside in fresh air, you might be finding it difficult to adjust to your new snowbound status. Most individuals spend more time indoors during the winter, but this is even more pronounced in older adults, those with dementia, and their caregivers. Persons with dementia may experience increased confusion due to shorter days, less sunlight, and disruptions from a normal routine. He/she may also exhibit “wandering” behavior which includes walking or pacing about and trying to leave a safe environment. Although not all wandering is bad, unsafe wandering has the potential to turn into a very dangerous situation.
To keep behavioral issues at bay, prevent unsafe wandering, and maintain levels of physical activity, consider frequenting a local indoor walking path or create a safe path to walk inside your own home. Many say that walking is one of the best exercises because it requires very little equipment, can be done almost anywhere, and can be done by almost anyone. Furthermore, walking with your person with dementia can help to channel wandering behavior into a safe outlet. As human beings, we have inherent impulses that drive us to be active and to seek out activity. Therefore, be deliberate in making sure your person is being stimulated and challenged at a comfortable level. And don’t worry, winter won’t last forever! 🙂
Feeling crafty? Make a homemade pomander ball! Pomander balls, commonly seen at weddings and baby showers, actually have very interesting historic roots. Learn more about the history behind the pomander here.
Buy rosettes at a craft store, create your own by shaping pieces of tissue paper, or punch/cut out flower shapes from scrapbooking paper. Use crochet pins to fasten each rosette into place on a large to medium sized styrofoam ball. Use the pomander ball as a centerpiece or tie a ribbon around the ball to be used as a hanging decoration.
Remember, it’s the process not the product. Our primary goal is that the person enjoy themselves; it is not important that we create a flawless finished product. If it’s becoming apparent that the person is becoming confused or frustrated, leave the remainder of the activity for another day. In fact, it may be easiest to plan the activity over the course of several sessions, versus trying to do everything in a single sitting. If your person is further progressed in the disease, they may get more pleasure out of watching you do the activity or admiring the finished product. Be flexible and have fun with it!
This activity idea comes from Measure of the Heart, a novel by Mary Ellen Geist, recounting her personal experience of returning home to Michigan to help care for her father who is diagnosed with dementia. Her father, Woody Geist, also appears in the HBO documentary “The Alzheimer’s Project”. The Geist’s resilience and candor in the face of this devastating disease is truly inspirational.
The following excerpt is taken directly from the book:
Alzheimer’s Chicken
whole chicken, about 4 pounds
1 green apple, washed and cored
3 stalks of celery, rinsed
1 yellow or white onion, skin removed
several sprigs of fresh rosemary, sage, and thyme, rinsed
1/2 cup red wine
3 tbs olive oil
Preheat oven to 350 degrees F. Rinse a 4-pound roasting chicken, removing and discarding the giblets from the cavity.
Place the green apple, celery, onion, and herbs on a large chopping board. Hand a not-so-sharp knife to the Alzheimer’s patient, depending of course on how far the disease has progressed. It may not be wise to do this for Alzheimer’s patients who’ve been living with the disease for more than ten years, but my father can still safely use a knife if I stand next to him and make sure he isn’t holding it upside down.
Let the patient chop up the fruit, vegetables, and herbs however the hell he or she wants to, without hovering and explaining how to do it! Don’t say: “No! Do it like this!” Remember: It doesn’t matter what the chunks look like or how big or small they are. The process can be liberating not only for the patient but also for you.
Open the cavity of the chicken and have the Alzheimer’s patient help you stuff the bird with a big wooden spoon. Put the chicken in a 9×13 inch baking dish or pan. Pour the red wine, olive oil, and a little water over the stuffed bird. Cook it in the oven at 350 degrees F for at least two hours, until the temperature of the thigh reaches 180 degrees F. Have the Alzheimer’s patient help you baste the bird often. Let it sit a bit after you’ve taken it out of the oven; then slice and serve.
Clinical trials are essential to advancing Alzheimer’s disease research at a time when Alzheimer’s is reaching epidemic proportions. Through clinical studies conducted over the last 20 years, scientists have made tremendous strides in understanding how Alzheimer’s affects the brain. It is only through clinical studies that we will develop and test promising new strategies for treatment, prevention, diagnosis, and ultimately, a cure for Alzheimer’s disease.
To learn more about how to participate in clinical trial, watch the video below about TrialMatch (a free, clinical-trial matching service).
Have you ever thought about attending a support group but were reluctant to give it a try?
Support groups are a safe place to share feelings and experiences, and many people find them to be invaluable resources.
A support group is a place to:
Exchange practical information on caregiving problems and possible solutions
Talk through challenges and ways of coping
Share feelings, needs and concerns
Learn about resources available in your community
All of our support groups are facilitated by trained individuals. In addition to caregiver support groups, we also have support groups designed specifically for people in the early stages of Alzheimer’s. We are currently offering early stage support groups in Birmingham and Taylor (and soon, in Sterling Heights too!). To learn more or to register, please dial our 24/7 Helpline at 800-272-3900.
Want to find a Alzheimer’s Association support group near you? Click here. Prefer to get support online? Join AlzConnected, our online community.
I seriously cannot be the only person who has not done their holiday shopping yet…right? Well, if you’ve procrastinated like me, or if you have a few people still remaining on your gift list, consider an easy, do-it-yourself present that your person with dementia may enjoying helping you with. In searching the internet, I encountered dozens of potential ideas for this post, from diy christmas ornaments, to cookie recipes, to personalized coffee mugs and more. If you are reading this and not already familiar with Pinterest, let me just say….I LOVE Pinterest! I’m actually what you would call pin-sessed. Not only is Pining a fun (and addicting) past time, but there are a plethora of activity and recipe ideas which you and your person with Alzheimer’s may enjoy trying. Just saying!
So after doing my research, I finally settled on a “gifts in a jar” theme. These really appealed to me because of their versatility (did you know you can make so many different gifts in a jar??) and their easy execution. Chances are, you probably have many of the things needed for this activity already in your home.
In the example below, this diy gift in a jar contains a “fudgy brownie mix”. Honestly, who wouldn’t want to receive that as a present? Your person with dementia can assist in this activity by dumping in the different layers of ingredients, one at a time. This will probably be easiest if you offer guidance and supervision throughout the process. For instance, you could pre-measure the quantity of flour needed for the bottom, position a funnel over the mouth of the jar, then assist your person in pouring the flour in through the funnel. It may work best to repeat the process of pre-measuring, funnel, and guided assistance with the remaining layers. Of course, the amount of hands on supervision you provide will vary depending on what stage of the disease your person in living with. Your person may also enjoy nibbling on the chocolate chips (which are added to the jar last), or reminiscing about pleasant memories involving food and baking. Many older adults experience a great deal of fulfillment from sharing their stories with others, and it is important to offer opportunities which encourage this.
Below I’ve included the ingredient list for this gift in a jar, as well as recipe instructions for the recipient of this gift. For more details, please visit the SixFiguresUnder official website. Happy Holidays everyone! 🙂
Homemade Fudgy Brownie Mix
1 cup + 2 tbs flour
2/3 cup packed brown sugar
2/3 cup sugar
3/4 tsp salt
1 tsp baking powder
1/3 cup cocoa
1/2 cup chocolate chips
1/2 cup chopped walnuts (optional)
Instructions for Using Homemade Brownie Mix
Mix contents of the jar with:
2 eggs
1/4 cup water
2/3 cup oil
1 tsp vanilla
Pour into a greased 9″ square pan. Bake at 350 degrees for 35-40 minutes or until an inserted knife comes out clean.
It’s July. For most of us, this time of year is filled with sunshine, beaches, barbecues, and the like. In fact, what would summer be if it lacked the many traditions that have become so ingrained in our culture? However, many individuals with Alzheimer’s disease might be excluded from such activities. If it has become difficult to go on outings, for instance, or to leave the home for extended periods of time, our traditional ideas of ‘summer fun’ may be out of the question for our family member with dementia.
Bring summer indoors by enjoying a cool, crisp, delicious glass of ice-cold lemonade or freshly brewed iced tea. These summer staples are not only refreshing and oh-so-good, but they may bring back memories and feelings from summers long ago. Sip on these cool beverages with your loved one while encouraging them to reminisce about the past. Or just chit-chat while you sit in your most comfortable chairs. Even individuals that are no longer verbal will likely enjoy this special treat and companionship. Another bonus: fluids are extremely important to physical health and cognitive function, and yet many elders do not get enough. Use this activity to encourage your loved one to stay hydrated through the hot summer months.
Below is a recipe taken from foodnetwork.com, which boasts the Perfect Homemade Lemonade. Try this or another recipe for you and your loved one to enjoy. If your person is able, they might like to help you by juicing the lemons. If sugar is a concern, consider using a sugar alternative or swap the lemonade for ice water with a wedge of lemon. Have fun, and stay cool! 🙂
Ingredients:
4 cups sugar
4 cups fresh lemon juice
2 lemons, sliced
Ice for serving
Directions:
In a large saucepan, heat the sugar and 4 cups water until the sugar is dissolved and the mixture is hot. Allow to cool, and then place into a large drink dispenser or jug. Add 2 gallons cold water, the lemon juice and lemon slices and stir to combine. Refrigerate and allow to chill completely.
As caregivers, it is important for us to identify passive activities, as well as action-oriented ones, in which to engage our loved ones. Especially as the disease progresses further and the person’s abilities diminish, passive involvement may become more appropriate. Another plus: passive activities are extremely versatile — virtually anyone at any stage of dementia can find pleasure in them.
Have you ever had someone brush or stroke your hair? It’s enjoyable for a lot of us (just look at the smile on that baby!). Brushing or playing with your loved one’s hair is an excellent way to foster meaningful connection, especially if language is no longer accessible. In the absence of words, we can communicate love, care, and reassurance through our touch. Older adults in particular may benefit from this type of interaction as many are touch deprived.
At your next opportunity, try this out with your person with dementia. You could simply touch the person’s hair, or brush, stroke, braid, style, wash, etc. See if you notice any nonverbal feedback from your person that indicates whether they are enjoying what you are doing (e.g. eyes closing, body relaxing). Of course, if you observe signs that suggest pain, such as grimacing or wincing, do not continue with that type or intensity of touch.
References
Love, K., & Femia, E. (2014). The comfort of touch. Health Progress, 95(6), 28-31.
Nicholls, D., Chang, E., Johnson, A., & Edenborough, M. (2013). Touch, the essence of caring for people with end-stage dementia: A mental health perspective in Namaste Care. Aging & Mental Health, 17(5), 571-578. doi:10.1080/13607863.2012.751581
When you hear the word “activities”, what do you think of? Maybe you picture arts & crafts, bingo, card games, or woodworking. To participate in such activities, one must: follow instruction, sequence multiple steps, maintain mental focus, etc., etc. Executing such activities effectively involves use of higher order cognitive processes that are eventually eroded in dementia. Activities need to be simplified more and more extensively as the disease progresses. As your person enters the late stage of the disease, even familiar activities may become too complex.
However, it is critical that those with late stage dementia still be engaged. Keep in mind that “activities” may no longer resemble activities that we would traditionally think of. Reading a book out loud to the person with dementia, listening to a song together, or looking out the front window are all activities suitable for individuals in the later stages of the disease. At this point in the disease process, sensory stimulation or ‘passive’ activities tend to work best.
For someone in the late stage of Alzheimer’s, the Twiddle Muff may be an ideal choice of activity. The friendly, soft and cozy muff, contains a soft, squeezable ball tethered within the center of the muff. It also has three exchangeable gadgets: a sealed satin bag containing movable marbles, a strand of textured ribbons, a loop of colorful wooden beads, as well as a soft, faux suede pocket for personal essentials and a velcro tab patch.
The Twiddle®Cat provides comfort, warmth, and activity to promote increased hand flexibility and brain stimulation. It can help and comfort those with diminished hand mobility, limited social interaction or anyone soothed by repetitive tactile motion.
Interested in learning more or purchasing this product? Follow the links below:
No-bakes can be whipped up in less time and with fewer ingredients than most traditional cookies. In fact, you probably have everything you need right in your pantry. Low maintenance recipes (like this one) are ideal, as this may prevent confusion and frustration from occurring. Simple AND scrumptious? How deliciously perfect! 🙂
As the person’s dementia progresses, certain abilities will fade. Therefore, it is important to provide the right amount of supervision and hands on assistance in order for the person to be successful. For instance, someone who is in the early stages of dementia may be able to manage several steps of the recipe without a lot of help. However, someone else that has progressed to the middle stages of the disease, may do better with a 1-2 or single step task, such as dropping spoonfuls of the cookie mixture onto a prepared baking sheet.
Each person is different. Be observant to how YOUR person is reacting to what he/she is bring asked to do. If we notice confusion or anxiety, that may be our cue to simplify instructions and/or slow down the pace of the activity.
The recipe below was taken from a foodnetwork.com entry. I’ve seen other recipes that include shredded coconut, candy pieces, or other little surprises mixed in. You could also try ‘lightening up’ the recipe will fat free peanut butter or sugar alternatives. Hope you enjoy!
Ingredients
2 cups sugar
1/2 cup milk
1 stick (8 tbs) unsalted butter
1/4 cup unsweetened cocoa powder
3 cups old-fashioned rolled oats
1 cup smooth peanut butter
1 tbs pure vanilla extract
Large pinch of kosher salt
Directions
Line a baking sheet with wax paper or parchment.
Bring the sugar, milk, butter and cocoa to a boil in a medium saucepan over medium heat, stirring occasionally, then let boil for 1 minute. Remove from the heat. Add the oats, peanut butter, vanilla, and salt, and stir to combine.
Drop teaspoonfuls of the mixture onto the prepared baking sheet, and let sit at room temperature until cooled and hardened, about 30 minutes. Refrigerate in an airtight container for up to 3 days.
Alzheimer's Activities and More! 